Bicoronal Synostosis 𝘪𝘴 𝘢 𝘤𝘰𝘯𝘥𝘪𝘵𝘪𝘰𝘯 𝘪𝘯 𝘸𝘩𝘪𝘤𝘩 𝘵𝘩𝘦 𝘣𝘰𝘯𝘦𝘴 𝘪𝘯 𝘢𝘯 𝘪𝘯𝘧𝘢𝘯𝘵‘𝘴 𝘴𝘬𝘶𝘭𝘭 𝘨𝘳𝘰𝘸 𝘵𝘰𝘨𝘦𝘵𝘩𝘦𝘳 𝘵𝘰𝘰 𝘦𝘢𝘳𝘭𝘺, 𝘤𝘢𝘶𝘴𝘪𝘯𝘨 𝘱𝘳𝘰𝘣𝘭𝘦𝘮𝘴 𝘸𝘪𝘵𝘩 𝘣𝘳𝘢𝘪𝘯 𝘨𝘳𝘰𝘸𝘵𝘩 𝘢𝘯𝘥 𝘩𝘦𝘢𝘥 𝘴𝘩𝘢𝘱𝘦. 𝘉𝘪𝘤𝘰𝘳𝘰𝘯𝘢𝘭 𝘚𝘺𝘯𝘰𝘴𝘵𝘰𝘴𝘪𝘴 𝘪𝘴 𝘢 𝘧𝘶𝘴𝘪𝘰𝘯 𝘰𝘧 𝘣𝘰𝘵𝘩 𝘤𝘰𝘳𝘰𝘯𝘢𝘭 𝘴𝘶𝘵𝘶𝘳𝘦𝘴 𝘸𝘩𝘪𝘤𝘩 𝘭𝘦𝘢𝘥𝘴 𝘵𝘰 𝘢 𝘩𝘦𝘢𝘥 𝘴𝘩𝘢𝘱𝘦 𝘤𝘢𝘭𝘭𝘦𝘥 “𝘣𝘳𝘢𝘤𝘺𝘤𝘦𝘱𝘩𝘢𝘭𝘺.”𝘛𝘩𝘪𝘴 𝘤𝘢𝘶𝘴𝘦𝘴 𝘳𝘦𝘴𝘵𝘳𝘪𝘤𝘵𝘪𝘰𝘯 𝘰𝘧 𝘨𝘳𝘰𝘸𝘵𝘩 𝘰𝘧 𝘵𝘩𝘦 𝘢𝘯𝘵𝘦𝘳𝘪𝘰𝘳 𝘧𝘰𝘴𝘴𝘢 𝘳𝘦𝘴𝘶𝘭𝘵𝘪𝘯𝘨 𝘪𝘯 𝘢 𝘴𝘩𝘰𝘳𝘵𝘦𝘳 𝘢𝘯𝘥 𝘸𝘪𝘥𝘦𝘳 𝘵𝘩𝘢𝘯 𝘯𝘰𝘳𝘮𝘢𝘭 𝘴𝘬𝘶𝘭𝘭.
For the past week, Patrick and I along with our immediate families have been praying hard for Owen. Bicoronal Synostosis at its most severe would mean an intense 3-5hr surgery on O’s skull followed by a Plagiocephaly Helmet treatment. Of all the Craniosynostosis types, Bicoronal only makes up 5%-10% of cases. I’m sure you can imagine how just the thought of this brought us to tears.
Yesterday we took Owen to see a plastic surgeon who specializes in Craniosynostosis. After examining his head, he told us that O’s skull is not fused together, which means he will not need surgery!
Insert all the praise hands: 🙌🏼🙌🏽🙌🏾🙌🏿.
He also said that for now, O will not need a helmet either. We just have to be mindful of the positions we leave O in – such as proping him on his sides when he’s in his Dock-A-Tot, more tummy time, sitting him up in his Bumbo, and using a or simple things like taking him out of his car seat while we grocery shop.
Just being real with y’all: I’ve spent the past week in tears, unable to focus, feeling helpless for Owen, & praying nonstop that he will not have to have surgery on his little head — Yesterday I left the doctors appointment in tears of joy. Thank you God for this answered prayer <3