Owen’s Potential Plagiocephaly Disorder

๐๐ข๐œ๐จ๐ซ๐จ๐ง๐š๐ฅ ๐’๐ฒ๐ง๐จ๐ฌ๐ญ๐จ๐ฌ๐ข๐ฌ

Bicoronal Synostosis ๐˜ช๐˜ด ๐˜ข ๐˜ค๐˜ฐ๐˜ฏ๐˜ฅ๐˜ช๐˜ต๐˜ช๐˜ฐ๐˜ฏ ๐˜ช๐˜ฏ ๐˜ธ๐˜ฉ๐˜ช๐˜ค๐˜ฉ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ฃ๐˜ฐ๐˜ฏ๐˜ฆ๐˜ด ๐˜ช๐˜ฏ ๐˜ข๐˜ฏ ๐˜ช๐˜ฏ๐˜ง๐˜ข๐˜ฏ๐˜ต๐˜ด ๐˜ด๐˜ฌ๐˜ถ๐˜ญ๐˜ญ ๐˜จ๐˜ณ๐˜ฐ๐˜ธ ๐˜ต๐˜ฐ๐˜จ๐˜ฆ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ ๐˜ต๐˜ฐ๐˜ฐ ๐˜ฆ๐˜ข๐˜ณ๐˜ญ๐˜บ, ๐˜ค๐˜ข๐˜ถ๐˜ด๐˜ช๐˜ฏ๐˜จ ๐˜ฑ๐˜ณ๐˜ฐ๐˜ฃ๐˜ญ๐˜ฆ๐˜ฎ๐˜ด ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ฃ๐˜ณ๐˜ข๐˜ช๐˜ฏ ๐˜จ๐˜ณ๐˜ฐ๐˜ธ๐˜ต๐˜ฉ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ฉ๐˜ฆ๐˜ข๐˜ฅ ๐˜ด๐˜ฉ๐˜ข๐˜ฑ๐˜ฆ. ๐˜‰๐˜ช๐˜ค๐˜ฐ๐˜ณ๐˜ฐ๐˜ฏ๐˜ข๐˜ญ ๐˜š๐˜บ๐˜ฏ๐˜ฐ๐˜ด๐˜ต๐˜ฐ๐˜ด๐˜ช๐˜ด ๐˜ช๐˜ด ๐˜ข ๐˜ง๐˜ถ๐˜ด๐˜ช๐˜ฐ๐˜ฏ ๐˜ฐ๐˜ง ๐˜ฃ๐˜ฐ๐˜ต๐˜ฉ ๐˜ค๐˜ฐ๐˜ณ๐˜ฐ๐˜ฏ๐˜ข๐˜ญ ๐˜ด๐˜ถ๐˜ต๐˜ถ๐˜ณ๐˜ฆ๐˜ด ๐˜ธ๐˜ฉ๐˜ช๐˜ค๐˜ฉ ๐˜ญ๐˜ฆ๐˜ข๐˜ฅ๐˜ด ๐˜ต๐˜ฐ ๐˜ข ๐˜ฉ๐˜ฆ๐˜ข๐˜ฅ ๐˜ด๐˜ฉ๐˜ข๐˜ฑ๐˜ฆ ๐˜ค๐˜ข๐˜ญ๐˜ญ๐˜ฆ๐˜ฅ โ€œ๐˜ฃ๐˜ณ๐˜ข๐˜ค๐˜บ๐˜ค๐˜ฆ๐˜ฑ๐˜ฉ๐˜ข๐˜ญ๐˜บ.โ€๐˜›๐˜ฉ๐˜ช๐˜ด ๐˜ค๐˜ข๐˜ถ๐˜ด๐˜ฆ๐˜ด ๐˜ณ๐˜ฆ๐˜ด๐˜ต๐˜ณ๐˜ช๐˜ค๐˜ต๐˜ช๐˜ฐ๐˜ฏ ๐˜ฐ๐˜ง ๐˜จ๐˜ณ๐˜ฐ๐˜ธ๐˜ต๐˜ฉ ๐˜ฐ๐˜ง ๐˜ต๐˜ฉ๐˜ฆ ๐˜ข๐˜ฏ๐˜ต๐˜ฆ๐˜ณ๐˜ช๐˜ฐ๐˜ณ ๐˜ง๐˜ฐ๐˜ด๐˜ด๐˜ข ๐˜ณ๐˜ฆ๐˜ด๐˜ถ๐˜ญ๐˜ต๐˜ช๐˜ฏ๐˜จ ๐˜ช๐˜ฏ ๐˜ข ๐˜ด๐˜ฉ๐˜ฐ๐˜ณ๐˜ต๐˜ฆ๐˜ณ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ธ๐˜ช๐˜ฅ๐˜ฆ๐˜ณ ๐˜ต๐˜ฉ๐˜ข๐˜ฏ ๐˜ฏ๐˜ฐ๐˜ณ๐˜ฎ๐˜ข๐˜ญ ๐˜ด๐˜ฌ๐˜ถ๐˜ญ๐˜ญ.

For the past week, Patrick and I along with our immediate families have been praying hard for Owen. Bicoronal Synostosis at its most severe would mean an intense 3-5hr surgery on Oโ€™s skull followed by a Plagiocephaly Helmet treatment. Of all the Craniosynostosis types, Bicoronal only makes up 5%-10% of cases. Iโ€™m sure you can imagine how just the thought of this brought us to tears.

Yesterday we took Owen to see a plastic surgeon who specializes in Craniosynostosis. After examining his head, he told us that Oโ€™s skull is not fused together, which means he will not need surgery!

Insert all the praise hands: ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿฝ๐Ÿ™Œ๐Ÿพ๐Ÿ™Œ๐Ÿฟ.

He also said that for now, O will not need a helmet either. We just have to be mindful of the positions we leave O in โ€“ such as proping him on his sides when he’s in his Dock-A-Tot, more tummy time, sitting him up in his Bumbo, and using a or simple things like taking him out of his car seat while we grocery shop.

Just being real with yโ€™all: Iโ€™ve spent the past week in tears, unable to focus, feeling helpless for Owen, & praying nonstop that he will not have to have surgery on his little head โ€” Yesterday I left the doctors appointment in tears of joy. Thank you God for this answered prayer <3

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